TY  - GEN
TY  - GEN
T1  - Personalized medicine : legal and ethical challenges
T2  - Forum Iuris
A1  - Mansnérus, Juli, 1984- kirjoittaja, toimittaja
A1  - Lahti, Raimo, 1946- kirjoittaja, toimittaja
A1  - Blick, Amanda, kirjoittaja, toimittaja
LA  - eng
PP  - Helsinki
PB  - Faculty of Law, University of Helsinki
YR  - 2020
UL  - https://kansalliskirjasto.finna.fi/Record/helka.9934032451706253
AB  - The paradigm of personalized medicine is an emerging topic, triggering some specific legal and ethical challenges as regards data collection, sharing and use, informed consent, privacy and public trust, and the changing status of patients and social equality. These legislative developments and challenges have been discussed in light of the Finnish and the common-European experiences. During recent years, the Finnish legislative processes aiming at generating 'innovation-friendly' legislation for scientific research purposes as well as integrating genomic research results into the clinical setting have been heavily challenged by rapid developments in technology and medicine. In particular, there is a need to pursue the right balance between scientific and commercial interests, public health, and individual rights. We aim at providing insights into the legislative processes surrounding personalized medicine with a special focus on how the freedom of science, equitable access to healthcare, public health, and commercial issues that must be balanced with individual rights as expressed in the EU Charter and the Council of Europe's Oviedo Convention on Human Rights and Biomedicine.
NO  - Toimittajat myös kirjoittajia.
SN  - 978-951-51-6940-2 pehmeäkantinen
KW  - Biomedical Research.
KW  - Gene Editing.
KW  - Legislation, Medical.
KW  - Reimbursement Mechanisms.
KW  - alaikäiset.
KW  - bioetiikka.
KW  - biolääketiede.
KW  - biopankit.
KW  - geenitekniikka.
KW  - geeniterapia.
KW  - geenitestit.
KW  - lainsäädäntö.
KW  - lääketeollisuus.
KW  - lääketieteellinen etiikka.
KW  - lääkkeet.
KW  - tietoon perustuva suostumus.
KW  - täsmälääketiede.
KW  - minderåriga.
KW  - bioetik.
KW  - biomedicin.
KW  - biobanker.
KW  - genteknik.
KW  - genterapi.
KW  - gentest.
KW  - lagstiftning.
KW  - läkemedelsindustri.
KW  - medicinsk etik.
KW  - läkemedel.
KW  - informerat samtycke.
KW  - precisionsmedicin.
ER  -